ERN common data elements

Semantic data model of the set of common data elements for rare disease registration. To make rare disease registry data Interoperable (the 'I' in FAIR). Version 2.0. License CC0. Here, we present a semantic data model of the set of common data elements for rare diseases registration recommended by the European commission joint research centre. There are 16 data elements: ?Pseudonym?, ?Date of Birth?, ?Sex?, ?Patient?s status?, ?Date of death?, ?First contact with specialised centre?,...
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